Book Review – ‘Sumit The Brave Heart’

“Being his parents, we deemed it as our duty to create an atmosphere of comfort. A visit to the market was followed by an adventure at Fun Park in Ranital, Jabalpur”

In Sumit’s early years, his parents noticed a change in his gait and consulted a paediatrician. After a series of unfortunate events, he was diagnosed with muscular dystrophy. The couple’s dilemma while planning a second child, their struggle in providing the best possible life for Sumit, consulting doctors in various of medicine and his unfortunate demise by pneumonia are all documented in this memoir.

“Creatine Phosphokinase (CPK) value was an indication of Duchenne Muscular Dystrophy (DMD)”

Sumit Shekhar kept his spirits up despite being diagnosed with muscular dystrophy and excelled in academics and extracurricular activities. His achievements include securing a rank at the prestigious National Cyber Olympiad and a seat at IIT-Bombay. He wanted to serve the unprivileged section of the society through education and he did so, in the form of YouTube videos.

“When chances of betterment are slim, people often move in search of hope wherever they can find it”

His father Sudhir kept the family together in this time of distress. He didn’t try to start a conversation and allowed silence to do the talking in the clinic. The family found solace in the form of worship and in the company of people diagnosed with a similar disorder. Sumit’s younger sibling, Shishir was instrumental in taking care of his elder brother.

“DMD (Duchenne Muscular Dystrophy) has a very early onset at an age of about two years when the child starts facing problems. It is the most lethal with severe complications and requires a different approach”

‘Sumit The Brave Heart’ chronicles the life of Sumit Shekhar, his grit, determination and enthusiasm towards day to day activities. This book also aims to create awareness about a lesser-known chronic illness.

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